Wednesday, May 1, 2013

Hi to all of ya'll that might read this blog. My name is Andrea and I am 32 years old. Any information I may post is from my experiences only. In 2011 I went thru guillian-barre and then got the diagnosis of myasthenia gravis. Since my emg and nerve study made a solid confirmation I have had 3 exacerbation's requiring IVIG treatment. But I also hope that a specialist reads all of what I am going to write and maybe could shed more light on where I am at medically.

Back in April of 2011 I had started to walk everyday and had gotten up to 4 plus miles a day. Then one morning I had gotten up and had a really bad stabbing sharp pain in the middle of my back on my spine along with needle prick pains in my toes. Being clueless to what these symptoms might be a warning for I went on about my day.  While walking my dogs I noticed that the needle prick pain had spread to include both feet and from my elbows to my fingertips. Also my walk was turning into a shuffle. For  about 4 days I endured the pain on my spine and the needle prick pains . I finally went to the emergency room and they diagnosed me with an upper respiratory infection and moderate spinal pain and sent me home along with instructions to go see a pcp in three days. Those three days just got more and more frightening. I lost the ability to shuffle up an incline.  I had to be picked up to be put into our vehicle. The day that I saw the Dr. the nurse called my name and my legs completely disappeared as I fell which happened so fast yet so slow I realized that something very serious was going on but what?

Freaking out in the ambulance the only comfort I could find was in Christopher's voice.  In the er waiting for the dr I was literally frozen with intense pain in my spine and scared. I was in the hospital for a weekend before a Dr. came by. Then when the first neuro specialist came in he did a quick standard test on me...which I nearly poked my eye out. His conclusion was that I didn't have a neuro problem and he left. By the end of the next day they finally decided to do a spinal tap also my friends had mentioned guillian-barre and the spinal tap supported this finding.

Thats all for right now...I'll be back soon!



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