At Reeve's I was surrounded by people who cheered me me on and by all of my loved ones.  Being a Hicks I am naturally tenacious and that's how I was during my pt.  By the end of may 2011 I was ready to go home and do out patient therapy.  The one thing that was still a factor was and to this day still is the pain that started at the onset of gb.  But I made a lot progress and graduated from pt in late august but by the end of October  I  plateaued.  Then as 2012 started I started to get worse.  I remember a neuro appt and as we were talking out of no where I remembered a dr back from when I was in the hospital say something about myasthenia gravis. Once I convinced my dr that I should be tested and get the ct the blood work came back positive and my thymus did show up enlarged.  By the end of June I had a confirmed diagnosis and my dr's and I were working on a plan of attack. As if going thru gb then recovering and then discovering the mg didn't happen fast enough things began to go faster.  At the end of July I had an mg exacerbation which landed me back in the hospital for a round of ivig.  I spent four days in the hospital and the day that i was released I went to my pre surgery apt for the thymectomy.  Two weeks later I am in surgery having my thymus removed.   Healing from the surgery seemed simple compared to daily life which had become so hit or miss. I definitely have more bad days than good.  About a month or two later we re did the blood work and did an emg/nerve conduction study.  Unfortunately, the tests all came back still positive.  So my dr's have tried me on all of the standard meds for mg.  My current combination is 60mg of prednisone every other day and cellcept 3000 mg daily. Those two in combination with other meds that help with my nerve damage from the gb and my chronic upper spinal pain seem to be the best that can be done.

I am having one of those days where I want to be out taking care of things or having coffee with friends but I made it to one apt and I was out for only 2 hrs and now I can barely walk and feel like I worked out with a trainer.  I know everyone has something that tests who they are and their faith.  But what I realized is that I am not alone and maybe someone going thru mg or gb or anything that has forever changed their life can maybe relate.  Well, my hands have spazed into claws so this good bye for now.  I pray ya'll have a great day!!